Exact matches only
Search in title
Search in content
Search in posts
Search in pages
portfolio
Filter by Categories
ADAM
Architecture
Big Data
Bio-IT World
Bioinformatics
Blog
Cases
cBioPortal
Consultancy
CTMM TraIT
Data Curation
Data Management
FAIR
Galaxy
Harry van Haaften
IMI EMIF
IMI ETRIKS
IMI Translocation
Irina Pulyakhina
Janneke Schoots
Jarno van Erp
Jojanneke Blaak
Joris Borgdorff
Kees van Bochove
Maxim Monait
Natalia Boukharov
OMOP and OHDSI
Open source
Peter Kok
Pieter Lukasse
Piotr Zakrzewski
RADAR CNS
Rianne Jansen
Riza Nugraha
Services
Seth Snel
Sjoerd van Hagen
Software Development
Software Engineering
Software licenses
Software licenses
Solutions
Spark
Team
Topics
Translational Research
tranSMART
TranSMART 2.0
Uncategorized
Ward Weistra
Wibo Pipping

@TheHyveNL

On 10 November The Hyve attended the personal health train workshop in Utrecht, which was organized for the active members of and all parties interested in the Personal Health Train (PHT) initiative.

The workshop started with introducing the PHT concept and outlining the main aim of the PHT initiative – to increase the use of existing biomedical research data in personalized health and medicine. Personal Health Train is an 8-year initiative starting on 1 January 2017 on the funding of the Province of Limburg.

During the day, three main topics were visited during panel sessions:

  • Privacy & Consent & Security & Ethics
  • Data stations, integration & making data FAIR
  • Federated, remote analysis, distributed learning

The Hyve, represented by Kees van Bochove, gave a talk during the second session with the title “How can we build a strong and thriving open source / open data community around FAIR principles?”. Slides from Kees can be found here.

Amongst the conclusions of the meeting, DTL Personal Health Train workshop report included the high value of PHT for patients and patient organizations (thus suggesting that patients and patient organizations should be the main stewards of the PTH), the need to establish a national ethics review board for various types of research and corresponding data types, and the necessity to use existing knowledge in the related areas, e.g., connect to such related big data and health care initiatives as MedMij and RESPECT4U. The meeting ended with asking the attendees to join the PHT initiative for any part of the project they are interested in (e.g., infrastructure / track, data storage / stations, or distributed learning systems / trains).

Leave a Reply

Your email address will not be published. Required fields are marked *

@TheHyveNL